Masscops members: Aydan needs our help! | MassCops

Masscops members: Aydan needs our help!

Discussion in 'Fundraisers & Charity Events' started by RodneyFarva, Jan 9, 2015.

  1. RodneyFarva

    RodneyFarva Get off my lawn!

    Hi guys and girls This Ayden, his mom, Christina, is a dispatcher for Marlborough police, fire, and a 911 dispatcher. Her only son Ayden is in real tough shape. so i'm asking all the masscops members here to dig deep to help him and his family in this difficult time.
    If you can give anything at all it would be more than appreciated.
    -Thank you guys.
    See below for the donation web site.
    8BhkZaDHTbuIm0jawlBPdw.jpg mpd911.jpg


    https://www.giveforward.com/fundrai..._overview_T1&og_action=hug&t=3&fb_ref=2962146

    Christina and Matt, parents of Aydan, have effectively been made to a one income family while Aydan fights for his life.

    Aydan is a real life superman. His underlying medical condition leaves him vulnerable to illnesses and contracted pneumonia and RSV. Because of this, one of his lungs collapsed and he had to be placed on a ventilator so he could breathe and is currently in the pediatric ICU at UMass Worcester Memorial. This is just following a month long stay at Boston Children's Hospital for the pneumonia and a 2 hour long seizure. He celebrated Halloween as a shark in Children's, Thanksgiving and Christmas at home (though admissions between them), New Years in UMass, and the little guy partied with Drs and nurses for his 4th birthday recently. They even sang for him! Since then, he's been having good days but is still capable of regressing. Due to the severity of his condition(s), doctors advised his parents to not work and remain available should they have to make decisions no parents should ever have to make. Christina's work has been overwhelmingly supportive and has paid time off however, Matt's, while incredibly supportive, does not have the ability to pay him when he doesn't work. The medical expenses have all been covered by insurance but they have mounting expenses that one paycheck is wearing thin. Mom and dad are considerably stressed and this will hopefully get one thing off their minds!
     
  2. mpd61

    mpd61 Retired Fed, Active Special

    Thanks Rodney,
    Will be glad to give
     
    Hank Moody and RodneyFarva like this.
  3. FTH

    FTH MassCops Member

    No one should have to make a choice between going to work or to pediatric ICU :(
    done!
     
    Hank Moody and RodneyFarva like this.
  4. CapeSpecial

    CapeSpecial MassCops Member

    Done!
     
    RodneyFarva likes this.
  5. Pvt. Cowboy

    Pvt. Cowboy Lemme take a selfie Staff Member

    Donation complete.
     
    RodneyFarva likes this.
  6. RodneyFarva

    RodneyFarva Get off my lawn!

    Thanks guys! lets keep it going. please spread the word, After all his is a fellow PO. ;)

    ea90kDJvT8qw3CSgD0ga1A.jpg
     
    LGriffin, Hank Moody and FTH like this.
  7. RodneyFarva

    RodneyFarva Get off my lawn!

    Superman Continues to Surprise Doctor's

    Our first update here. The Doctors and Nurses are amazing at UMass and they all have said the same about Aydan. With few setbacks in the last week since a very bad Monday, some are saying he's a new kid with the improvements. He is still on a ventilator but they are adjusting the settings and seeing what he can tolerate as he continues to fight the viruses.

    The medical staff have been successful in getting rid of some of the excess fluid caused by the ventilator which, unfortunately, is cyclic because the ventilator is needed more as more fluid is stored. Since they have been administering various treatments for the fluid, about 4 days, the little guy lost 4 POUNDS. That is a LOT of water weight and certainly helps explains both why it was so difficult to keep his little body oxygenated and why he's looking more "normal."

    Since earlier in the week, the nurses have not had to use a bag-valve mask to bring his levels up following chest PT as he is rebounding quicker. Additionally, his chest x-rays are getting clearer and it no longer looks like a London fog filling both.

    We'd like to thank you for your positive thoughts and prayers and to keep them going since being on a ventilator is still very serious.

    With this update is a picture. Keep in mind, he is sedated to keep him from grabbing and yanking tubes, cords, and wires. Aydan, however, loves sitting with his leg as pictured and sedation or not, he's doing what he wants! (He's also scowling occasionally because of the tube which is very good)

    https://www.giveforward.com/fundrai...b_wall&utm_campaign=dsp_update&fb_ref=2967241
     
    LGriffin, FTH and kwflatbed like this.
  8. RodneyFarva

    RodneyFarva Get off my lawn!

    Hey ladies and gents! this is a message from Adayn's mom today: :)
    "Good morning fb! Tears are flowing from
    My eyes as I just finished rounds with aydans dr who said he is low enough on vent to do a spontaneous breathing test which she feels he will no doubt pass and may be taken off vent this afternoon or def tomm am!! We all started crying happy tears!!! The rollercoaster will no doubt continue and he has a ways to go but my son is one to admire!! As well as the staff here in the icu- absolutely outstanding!!!!! Thank you all for the thoughts and prayers!! Keep em comin!!!"

    superman-wallpaper.jpg
     
    FTH, Hank Moody, kwflatbed and 2 others like this.
  9. Pvt. Cowboy

    Pvt. Cowboy Lemme take a selfie Staff Member

    Nice... Just got an email with updates... Glad that little guy is pulling through.
     
    RodneyFarva likes this.
  10. RodneyFarva

    RodneyFarva Get off my lawn!

    Update from today, slow and sure wins the race! :)

    "Today was the day!! Aydan kicked his breathing test butt and was just taken off vent!!! They expected him to dropped a bit but of course aydan is staying at 100%!! So far so good! Just gonna be a lot of maintaining to make him comfy! Thank u everyone!!!!"
    10509502_10155153290185118_2308745594980292967_n.jpg
     
    FTH and Hank Moody like this.
  11. RodneyFarva

    RodneyFarva Get off my lawn!

    "Looks who's awake and only on 1 liter of oxygen!"
    1925159_10155161025680118_5476254034388007154_n.jpg

    He's getting there! :)
     
    visible25, CapeSpecial and FTH like this.
  12. FTH

    FTH MassCops Member

    A superman indeed! Look at those bright keenly attentive eyes!
     
  13. RodneyFarva

    RodneyFarva Get off my lawn!

    Just to give you guys an update. 1393818_10155171794950118_7105609678202154290_n.jpg

    He's looking great!!!!!!:D:D:D
     
    FTH likes this.
  14. RodneyFarva

    RodneyFarva Get off my lawn!

    Wow! ...all I have to say is Wow!
    10372295_10155176748065118_3849684060079801692_n.jpg
     
  15. FTH

    FTH MassCops Member

    Little guy is looking good! Is he on the way home?
     
    RodneyFarva likes this.
  16. RodneyFarva

    RodneyFarva Get off my lawn!

    soon!!... I'll text his mom tomorrow, we still have her on paid sick leave and ai didn't to bug her.
     
    FTH likes this.
  17. RodneyFarva

    RodneyFarva Get off my lawn!

    100% Change in 7 Days!

    Since the last update, things have been immeasurably better. In fact, I'll cut to the chase, Aydan was discharged on 1/23/15!

    So now the details. He was extubated on Saturday after he continued to do well on the lower ventilator settings until it came to the point that they conducted a spontaneous breathing test to make sure he was able to keep his oxygen saturation high enough on his own. He passed the first time and it was removed within a few hours. The following day, he was put on high-flow oxygen as a precaution however, Mom and Dad weren't that nervous because it was at a lower setting than it was when they first arrived on 12/30! At this time, the PICU team predicted another 30 days of hospital admission before Aydan would be healthy enough to be discharged. As some of the team put it: "Aydan was in THAT bad of condition and THAT sick that he still has a lot of recovering to do."

    The next day, he was removed from the high-flow and was taking a small amount for support. By the end of the day, they noticed he must have knocked out the nasal tube and he was still holding in the high 90's for oxygen saturation so they removed all oxygen support! Apparently, Aydan knew better but nobody was paying attention...

    Tuesday, one of the PICU doctors came into the room, looked at Aydan and upon seeing no oxygen, he had been weaned off all IV medication (including a brief and unfortunate withdrawal episode of morphine), asked "So why are you still in the hospital?" Quite relieving for the parents to hear to say the least. They had several other appointments that day with Neurology, surgeons, and other specialists. The choice was made to cancel the surgery that had been scheduled at Children's Hospital back before his UMass admissions (all of them) and to just have the gastrostomy (G-tube/stomach feeding tube) done UMass to save everyone the trouble. Again, they were told probably a week at most following surgery and Aydan would be able to be discharged since that would now be the only thing keeping him in. He also got to meet a therapy dog since there were no longer restrictions for visitors (gloves, mask, gown etc). We use the word dog loosely... it is a Bull Mastiff.

    So yes you read that correctly, in a mere 4 days it went from 30 more days to he could leave now if it weren't for the surgery!

    Aydan was able to have the G-tube inserted on Thursday which coincidentally the same day it had been scheduled for at Children's. He is a very determined child, life-threatening diseases or not he wanted it to happen that day. The procedure was quick and incident free and within the night, he was moved officially out of PICU to the general pediatric floor. Friday night, he was sitting at home being rubbed, sniffed, and guarded by his two 4 legged friends whom missed him dearly!

    The complete road to recovery is still long but it appears he whooped the pneumonia and RSV in record time and against all odds, in true Superman fashion. With the G-tube in place, Mom and Dad can sleep a little easier because they no longer have to worry about the nasal feeding tube being pulled out and also it ensures ALL of his medication gets to where it is supposed to go which hopefully will help with his still undiagnosed seizure disorder. From here, the plan is to keep him healthy, figure out a combination of medication and diet to allow him to safely receive an MRI, then move forward with with diagnosing the cause(s)!

    From the bottom of their hearts, Christina, Matt, and Aydan thank you for your assistance in ALL ways through this extremely scary event. And not just from them, but from everyone that cares for this little guy, we thank you also and are forever grateful. aydan.jpg
     
    HistoryHound, Goose, FTH and 3 others like this.
  18. HistoryHound

    HistoryHound Supporting Member

    That's fantastic! Continued prayers for Ayden and his family.
     
    Kilvinsky, FTH and RodneyFarva like this.
  19. Kilvinsky

    Kilvinsky I think, therefore I'll never be promoted.

    Finally kicked in. So glad to see how well he's doing. Tough little guy, no question.
     
    RodneyFarva likes this.

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